Harps is ready to share. She has been diagnosed with Crohn's disease. She will be starting a very specific diet to try to kick this shit into remission. Literal shit! This diet includes no sugar at all. AHHH! And no cheat days. There is no specific cause and nothing she did caused it. It is just what we have.
I'd be lying if I said I wasn't mourning the loss of her normal childhood. One with ice cream dates, cupcakes for birthdays at school, and not having to worry about anything but homework. Whoa is me! She already doesn't have her dad and now no sugar. Those are two of the best things. As always we are choosing a super positive approach. She and I have already brainstormed ideas like an edible arrangement for her birthday (her idea), trading in her trick or treat bag for money, and Target trips on those super hard day when she can't partake in things other kids are experiencing. If you have other fun ideas let us know! Luckily my life partner is basically a chef!
Our care team is incredible and we got to meet them all. We also don't mind if you research but please don't share your findings with us. We've had experience navigating the medical roller coaster. I am so lucky to have such a positive, optimistic, and resilient little chick to do this with! The evening after her procedure she said, "Today was a good day!" May we all adopt Harper's attitude when life throws you curve balls!
Love to you all. No "aww poor Harpers" allowed. Positivity and fun ideas ahead! Also this momma promised to do the diet with her so here we come!
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